T1D Perfect Storms
If anyone who loved me read this article, it would probably make them worry about me going anywhere by myself, ever again. This story isn’t the most dangerous example, but it’s a good illustration of compound risk in Type 1 Diabetes (T1D) that we need to name and talk about.
The other day, I had to drive about 30 minutes from where I live into San Francisco for an event. Normally, this is something I complete start to finish, with T1D, with no problem. I’ve got a really good handle on T1D most days, but as we all know, then there are those other days that sneak up me — and it’s not until I’m in the middle of that perfect storm do I remember how risky it can be. It’s in that moment that I remember, viscerally in my body, that I’m walking a tightrope.
How Small Factors Pile Up
Right before I hopped in the car, I took a dose of insulin to curb a blood sugar rise I saw on my Continuous Glucose Monitor (CGM). However, as I neared my event about 30 minutes later, I could tell my blood sugar was starting to crash.And then, the perfect storm started to brew. I remembered the glass of wine I had had the night before, making me a bit more sensitive to insulin. I had also just put in a new CGM sensor, so a question mark lingered in my mind about it’s accuracy. Because of a family emergency in the morning, I had packed a backup blood sugar meter.
I grabbed a Fruit Leather from my car’s console and ate it, hoping it would be enough. It was my last fruit leather on-hand. I was overdue to stock back up on my low supplies.
Part of me wanted to keep circling for a parking spot, get to the workshop on time, and continue treating my low there. But luckily, my brain recognized the priorities here – getting to my workshop on time wasn’t worth an accident because my senses were shaky. I pulled over, found some strawberries in my lunch, and waited out my low. The workshop facilitator was totally supportive that I had taken the time to take care of myself.
As you can see, there were a pile-up of risk factors that make a low blood sugar extra risky. A low blood sugar that on one day is no problem to treat, suddenly became the recipe for a perfect storm, with a fender bender as one of the potential risks.
The T1D Perfect Storm
The above image shows some of the most common overlapping risk factors. But risks can increase via:
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Technology failures
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Forgetting a supply at home
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Running out of a supply (often due to insurance)
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Time constraints
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Being in a remote location
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Being around people who don’t know us well
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Getting used to something working and not having a backup
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Sickness
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Alterations in routine
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Adjacent crises
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Choosing to avoid economic, time, or social risks at the cost of personal health risks.
How to Do a Look-Back
A natural way humans learn is through difficulty. A toddler learning to walk must fall down several times in order to learn how to balance. In our adult worlds, we often are shamed for “failure”. But this is a natural way that humans learn. “Failure” is a beautiful, clear, teacher that I like to call a “learning lesson”. If we can set aside any guilt or shame we feel, we can do a Look-Back on these moments, understanding what led to them and what could be changed in the future. For me, a Look-Back has two parts.
First, I ask, without judgement, what contributed to this Perfect Storm?
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The night before, I had had a glass of wine.
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The day before, I had put in a new CGM sensor, so I had a question mark in my brain if it was calibrating correctly. I hadn’t packed a back-up blood sugar meter.
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My car supply of low snacks was down to 1. I had forgotten to pack my backpack supply of low snacks.
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A family friend was in the hospital so the morning routine was a little more hurried than usual. I didn’t leave late, but I didn’t have an abundance of extra time.
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There is a part of me that hates to be late to events, thinking it’s extremely rude to the organizer.
Second, where can I add a mitigation measure, or a fail-safe, so something similar doesn’t happen again? Some options:
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-> Put a reminder on my phone calendar every 3 months to re-stock my car low supplies, in case I forget.
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-> Leave an extra 15-minute buffer when I’m traveling to events, in case I need to stop and treat a low.
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-> Get a second blood sugar meter and put it in the car. While I’m at it, get back up batteries.
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-> Give myself a permission slip to be late to events occasionally, especially when unexpected T1D things pop up! Taking care of my health & safety is my top priority, above meeting social etiquette!
Places to get support:
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Join us on Tuesday, December 3rd at 5pm PST for Honoring Our Seasons: An Organic Approach to Type 1 Diabetes Burnout, Rest, and Renewal.
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Diabetes can sometimes make us feel like machines, but like nature, we have seasons where our energy fluctuates. In this workshop, we’ll gather to reflect on our internal season and how to work with our rhythm, rather than against it. Register here.
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Interested in joining the first cohort of The T1D Self-Care Collective?
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Through courses, community, and 1:1 support — learn to skillfully navigate the healthcare system and the emotional ups & downs of T1D with more ease — so you can focus on living life. Email me for more info! mandy@sagediabetes.co
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